Thursday, December 22, 2005

'Tis the season

'Twas the night before Christmas, and all through the house, not a creature was stirring, except for my twitchy left arm, draped over my wonderful spouse. Oh, and maybe our daughter. She's been waking up more often at night lately. Perhaps one of her grandparents spilled the beans about Santa Claus coming.

In lieu of sending out Christmas cards, we're going digital this year. Less writing, folding and stuffing for my weakened hands you see. And one less item on Kirsten's list. The weaker I get, the more her workload grows. So when you don't get something in the mail from us, it doesn't mean Santa told us you were bad.

If 2004 was a year of tragedy for us, then 2005 will surely be remembered as miraculous. Our daughter Eva was born on Sunday, April 10th, and with her arrival came a renewed sense of purpose and spirit in our lives. She is truly a blessing and inspiration. An amazing little human being. We are overwhelmed by love for her. Kirsten read that having a child is like agreeing to have a part of your heart walk around outside your body for the rest of your life. It's a bargain we'd make any day.

That isn't to say that life hasn't been challenging this year. Not only do we continue to struggle with my illness, we continue the adjustment to becoming parents as well. As any parent can attest, learning to juggle life with a child, jobs, and a home is no small feat. Doing it with a fatal illness feels like yet another miracle. Hopefully my retirement will bring some sanity back to our lives.

But anytime we're feeling low, we have only to watch our daughter smile. Eva is crawling now. Pulling up and standing. Getting into places we never thought possible. Seems she does something new everyday. With the eyes of an angel, she can melt our hearts with the slightest arch of her brow. She'll be walking soon. Maybe even saying a word or two. Every night I dream about one day hearing her say, "I love you mommy and daddy."

'Tis the season to be jolly. Time to celebrate the miracle of Christmas and the blessings in our lives. We wish good tidings to those we love. Merry Christmas and a Happy New Year to you all.

And to all a good night.

1 comment:

Vanessa said...

Thanks for the beautiful Christmas message and pictures of Eva. Your writing is "powerful" and helps me so much, as I too deal with twitching, swollen ankles, weak arms and a tight throat. I had to stop teaching in October and know a little how you feel, Scott. I'll go back to the ALS clinic in Dallas in January for more tests and maybe some conclusion can be made. My children, like Eva, keep me going, and I forced myself to go see King Kong with my son tonight, not knowing if I will be able to next year. I admire your strength of spirit...both of yours...Let's remember to keep counting up...